How is Rett syndrome treated?
Because of its genetic nature, there is no cure for Rett syndrome at this time. At Children’s Hospital Colorado, our treatments are designed to help alleviate your child’s symptoms and to create the best possible quality of life. We see people of all ages for Rett syndrome and MECP2-related disorders in our Rett Clinic.
Some treatment approaches include medications to address possible seizures, gastroesophageal reflux, constipation, irregular heart rhythms, sleep problems, muscle stiffness, breathing problems and mood imbalances.
Feeding problems may also occur, requiring some patients to need supplemental food from a feeding tube. Scoliosis (a curved spine) may also require orthopedic interventions like braces or surgeries.
Physical, occupational and speech therapy are also used to address motor, communication, sleep and behavioral difficulties. Although no cure is available, these supportive treatments help most patients adapt to the symptoms of Rett syndrome.
Why choose us for the treatment of Rett syndrome?
Our team has developed a wealth of experience and knowledge about Rett and Rett-like disorders, and we’re recognized as national and international leaders in the field through our published research. We strive to develop and provide the most up-to-date care based on research and care guidelines. We participate in the latest clinical trials.
Our sub-specialty providers and therapists come together to evaluate and develop a treatment plan that is tailored to your child’s specific needs. Because so many specialties are housed under the same roof at Children’s Colorado, we can provide all the care that children with Rett syndrome need.
To make an appointment at the Rett Clinic, families and providers can contact the Rett Clinic at 720-777-4363 or email email@example.com.